Facts

Contact person:
Annica Rosvall
Financer:
  • Swedish Association for Gastroenterological Nursing
Responsible at MaU:
Annica Rosvall
Project members at MaU:
External project members:
  • Kaisa Fritzell - Karolinska Institute Sweden
  • Thomas de Lange – University of Gothenburg Sweden
  • Tim Pickles - Cardiff University Wales
  • Laura Neilson - Newcastle University England
  • Colin Rees - Newcastle University England
Collaborators :
  • Colonoscopy Research Sweden
Time frame:
01 April 2026 - 30 June 2029
Faculty/department:
Research environment :
Research subject:

About the project

Colonoscopy is a key procedure for the prevention, detection and follow-up of colorectal cancer. At the same time, many patients experience the examination as uncomfortable or stressful. Such experiences can influence willingness to participate in screening and follow-up, and thereby affect opportunities for early detection and effective prevention. Despite this, assessments of colonoscopy quality are currently based mainly on medical and technical indicators, while patients’ own experiences are rarely captured in a systematic way. The aim of the project is to make the patient’s voice an integral part of how colonoscopy quality is understood and monitored. By developing, translating and validating patient-reported experience measures (PREMs), the project provides tools that complement clinical indicators and highlight how care is actually experienced by those undergoing the examination.

The project comprises three interconnected sub-studies.

  • First, an internationally established questionnaire (Newcastle ENDOPREM) is adapted to the Swedish context in close collaboration with patients.
  • The second study analyses the relationship between patient experiences and established quality indicators in Sweden and England.
  • In the third study, a shorter Swedish questionnaire (Patient Experience Colonoscopy Scale) is compared with the international questionnaire to assess its suitability for national quality improvement and its potential for international comparability.

By combining patient experiences with clinical quality indicators, the project contributes to a more comprehensive understanding of colonoscopy quality, in which patient participation becomes an integrated part of quality improvement work. In the longer term, the findings may support quality development, increase participation in screening programmes, and contribute to improved care for colorectal cancer.