Contact person:
Matilda Svensson Chowdhury
  • Swedish Research Council for Health Working life and Welfare
Responsible at MaU:
Matilda Svensson Chowdhury
Project members at MaU:
Collaborators :
  • Niklas Altermark - Lund university (Project manager)
Time frame:
01 September 2019 - 31 March 2024
Research subject:

Project description

The aim of the project is to make sense of the life expectancy of people with intellectual disability as a political question.

The project consists of three case studies about the politics of life and death of disabled people:

  • The first study measures how life expectancy is affected by which services people are granted.
  • The second case study traces continuity and change as concerns how the lives of intellectually disabled people are valued, which is an important background for how the lives of members of this groups are shaped.
  • The third case study examine how common it is that people suffer from deaths that could have been avoided.

Taken together, these case studies will help conceptualise the life expectancy of intellectually disabled peopleas a political question. The starting point has been dialogues with representatives of the disabled people'smovement. Their insights have also affected the research design. The fact that disability advocats and disabledactivists have demanded research on this topic shows that our contribution not merely is about moving disabilitystudies forward, but also concern the human rights of people with intellectial disabilities.