Support to relatives in general palliative home care
About the project
General palliative care is increasingly provided in the patient's home, which means that relatives are becoming more involved in care. The involvement of relatives is often a prerequisite for the provision of palliative care at home, and increasingly advanced care in the home also increases the demands on the knowledge of relatives. In palliative care, relatives need support, yet support for them is both under-prioritized and lacking. In addition, support for relatives is less widely provided in general palliative care than in specialized palliative care.
Support for relatives in general palliative care at home needs to be improved, both during the period of care and after the patient's death. Research on the specific support needs of relatives during the period of care and after the patient's death in general palliative home care needs to be developed. Increased knowledge about this can guide improvements in support and contribute to a better understanding of when and what support relatives need, both during the period of care and after the patient's death.